Tips for Overcoming Dementia Stigma
Stigma is a word that means assigning shame to something. Family caregivers to older adults who have dementia may face stigma because of their family member’s condition. At first, when dementia was mild, friends and family may rally around the caregiver and senior. But, as time goes on and the disease progresses, people start to drop away, and the senior is no longer included in gatherings.
This can lead both to feel lonely and frustrated. Dementia stigma happens primarily because of fear. Fear of not understanding the disease, fear of not knowing how to interact with the older adult, and fear that dementia may be in their own future.
Caregivers may be able to overcome stigma or at least find ways to come to terms with it using these tips.
Educate Others
Sometimes knowledge can help people overcome their fears. Talk to people about dementia and how it affects your aging relative. Explain to them how they can best communicate with the senior. If they aren’t sure what to say, give them some ideas. Remind them that the older adult still has emotional needs for companionship, affection, and social interaction. Encourage them to ask questions about the disease and help them to find the answers.
Don’t Take It Personally
It’s normal for caregivers to be angry when other people avoid or ignore them. However, try to see dementia stigma for what it is. People probably aren’t staying away out of a malicious desire to hurt you or the older adult. And, while it isn’t okay to ignore you or the older adult, they’re probably just not emotionally equipped to handle the situation. Try to forgive their flaw.
Build a Network
You may not be able to do anything about the people who fall away, but you can work on building a stronger network with those who stay and are willing to help. Consider joining a support group where you can meet other dementia caregivers. Make an effort to keep up your relationships with friends and family who are supportive of your role as a caregiver.
Avoid Perpetuating Shame Yourself
People with dementia often do things that could be embarrassing in public. That could make you want to shelter them and yourself from the reactions of others. However, when you do that, you are isolating yourself and the older adult. In addition, you are supporting the idea that a senior with dementia is something to be ashamed of or feared. Don’t let dementia keep you from taking the senior on outings or having visitors come to the house.
If you or an aging loved-one are considering hiring Elderly Care in Westfield, IN, please call the caring staff at Home Services Unlimited. Serving Greater Indianapolis Area. Call for Immediate Info & Assistance: (317) 471-0760
Sources
Aarp.org
Alz.org
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